The University of Aberdeen – NHS Grampian Standard Operating Procedures (SOPs) have been updated to reflect recent changes in data protection legislation and to the UK Policy Framework for Health and Social Care Research. There have also been changes to the Quality Manual and Quality Statement and the archiving process has been reviewed. The list of documents is available at the NHS Grampian – University of Aberdeen Clinical Research Governance and Quality Assurance website.
The Medical Research Council (MRC) have published a report on ‘Mapping the landscape of UK health data research and innovation’. The report highlights the state of health data research in the UK, detailing key activities and major investments made by UK public funders, government, charities and universities from across the country.
The NHS Health Research Authority have issued guidance for researchers and study coordinators on the forthcoming General Data Protection Regulation (GDPR). The GDPR legislation covers consent, data controllers and personal date, transparency, safeguards, data subject rights and Data Privacy Impact Assessments. The guidance is aimed at researchers and study coordinators managing individual research projects and notes that, in most cases, the impact on individual research projects will be limited.
The University of Aberdeen have also published guidance on GDPR aimed at staff.
The Health Data Research UK partnership has announced funding for six sites across the UK to address challenging healthcare issues through use of data science. From April 2018, the six sites will work collaboratively as foundation partners in Health Data Research UK. The University of Aberdeen form part of the Health Data Research UK partnership and the award coincides with the newly established joint University of Aberdeen and NHS Grampian Aberdeen Centre for Health Data Science.
ISD Scotland have released a prototype model data page. The data is on ‘Acute hospital activity and NHS beds data’ and uses a proposed model for displaying the data. They asking for feedback on the data presentation.
Understanding Society, the UK Household Longitudinal Study, have released the ninth Wave of Innovation Panel data. The dataset contains experimental and methodological tests. Amongst the experiments is a study on the targeted timing of email invitations to surveys. Other experiments include the use mixed mode data collection, the value of respondent incentives, measurement of household finances, subjective expectations about returns to schooling, people’s assessment of what constitutes “successful ageing”, format of response options, use of multiple measurements to improve measurement of attitudes, and measurement of sensitive topics. There is a working paper on the results from the methodological experiments.
A Scottish Government report on an out-of-hospital cardiac arrest (OHCA) data linkage project has been published. The project is attempting to gain a clearer understanding of the low survival rate for OHCA patients in Scotland by linking data from patients treated by ambulance staff to in-hospital data.